In a rather unexpected decision I have decided to fly to China and take on another 250km challenge. My cousin Laura was diagnosed with Cystic Fibrosis (CF) and i feel this is my chance to raise some needy funds towards the Royal Children’s Cystic Fibrosis Research Trust (RCCFRT). CF is the most common life-threatening inherited disease in Australia. It is a disorder that severely affects lung function and digestion. 1 in 2500 children have the disease and 1 in 25 people are carriers of the CF gene. CF is currently incurable however 80% of those born with CF this century are expected to reach their 30th birthday.
The RCCFRT was formed in 2000 by a group of parents in conjunction with Associate Professor Robinson, Director of the Royal Children’s Hospital Cystic Fibrosis Unit. The goal is to fund research into aspect of CF and all research projects are based at the Royal Children’s Hospital, one of the world’s largest paediatric teaching hospitals.
As the membership of the Trust is entirely voluntary, every dollar raised goes directly to research. Since 2000, the Trust has paid the salaries of 11 doctors to undertake full time research into aspects of CF. It has funded the trips of three internationally recognised CF experts who have shared their knowledge and best practice with RCH medical professionals.
This charity runs close to my heart and you can support my challenge by donating directly to RCCFRT at http://www.rccfrt.org/how_to_donate.php